Twenty-one years ago, when I was diagnosed with primary progressive multiple sclerosis, my neurologist predicted that I would have a relatively disabling course of the disease. He wasn’t wrong.
Today, I have no use of my legs or my left arm and just enough umph in my right hand to operate my power wheelchair joystick, but I don’t expect that to last much longer. If not for my incredible wife, Kim, I would need a 24-hour care facility. The best such facility I know of is The Boston Home, an organization I am familiar with and a key partner in the CASA-MS study.
It’s probably too late to repair the damage that’s been done to my central nervous system, but there is something that could make it easier for me to bear — if one day we can find a cure for MS, in all its forms. It’s only a matter of time, and of money.
The Buffalo Neuroimaging Analysis Center, with their philosophy of patient centered research, is a world-class MS research facility, and leader of the CASA-MS study. I’m proud to be on their Patient Advisory Council, and happy to be advocating for more research into the progressive forms of MS.
I can’t think of a better trio of organizations to get behind than BNAC, The Boston Home, and the Annette Funicello Foundation. That’s why I am asking for your donation — any amount is appreciated.
Each of ANNETTE’S 100 has set a goal to give or raise $1,000 or more to CASA-MS progressive MS research. Your gift will help them reach their goal and will be matched by Annette’s Fund. LET US KNOW IF YOU’D LIKE TO BE ONE OF ANNETTE’S 100, TOO!